If you post lenses on Squidoo and want to create one related to ALS, feel free to join our new group: ALS Squidoo Group

Also check out all of my lenses, some on ALS, some on other topics, at my Lensmaster Page.

Tomorrow is the NW Arkansas Walk to D'Feet ALS! You still have time to join our team or donate and this link. If you have trouble, just take a look at our How To Guide.

The Walk is at Arvest Ballpark in Springdale and registration is at 9am. Come out in force, we can use all the help we can get! So grab a Pepsi and come on over!

If you've had problems registering for our walk or donating to our team, have no fear! I've made a step by step tutorial that you can use. Other teams can link to it too, just tell your people what link they should use as a signup before they come.

Click here for the help guide!

Trinity United Methodist Church

Directions from Springdale:
Take I-540 South to exit 66 (AR-112) - go .3 mi
Turn right onto N. Garland Ave - go 1.6 mi
Turn left at W Sycamore St - go 127 feet
The church is on the corner of Garland and Sycamore Streets.

Please call me at (479) 283-8724 if you need additional directions.

I look forward to seeing you on Monday, August 11th.

Cambridge - Boston, Mass
Website

Leading the Way for the Future of ALS Research

An open discussion between ALS patients and ALS researchers hosted by the world's leading translational ALS research center. The ALS TDI Leadership Summit is a two-day event aimed at providing a forum for the exploration of the past, present and future of research towards an effective treatment for amyotrophic lateral sclerosis. No charge for this program (or any ALS TDI program).

I'm posting this on both sites because some of these will cross over. Here are some of the things I have planned in the near future:

Information on helping with that pesky van conversion dragging problem (I truly hope an idea we were told of works)

Medicare/disability information

More resource links

Some blogs on emotional health for patients

Info on grief and not "stealing it"

And hopefully in the next few weeks I'll have some tips on getting a more affordable option for those who need a lift system from the bedroom to the bathroom

I've started writing some "lenses" about ALS on Squidoo, so check them out. Many many more are on the way.

How a caregiver has fun
Beating ALS to Death
Caring for the caregiver
Making places truly handicap accessible

Angela Lansbury has done a PSA for ALS, which you can view by clicking this link: Angela Lansbury PSA. Thanks, Angela!

This website is being put together for my mom, Martha, who is battling ALS, and for all other ALS patients and caregivers. Please forgive the mess while I get this thing going.

Schedule: Registration Begins at 9:00 am
Date: Saturday, September 27, 2008
Location: Arvest Ball Park
For more Information call Kate Kressen at 479-273-7411 or email kate@als-arkansas.org directly.

The walk site is wheelchair and stroller accessible. You don’t need to walk any or all of the route in order to participate. Visit martha.tribaldancer.com to join Martha's Marauders or donate!